We are the Huntington's Disease Society of America, Northern Plains Chapter. HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today and hope for tomorrow for people with Huntington's disease and their families.
The HDSA mission:
• To help individuals affected by Huntington's Disease and their families through support and services
• To educate both the public and health care professionals about Huntington's Disease
• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, We must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.
Contact us today
to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an Educational Event near you!
Chapter Contact Information
PO Box 595
East Grand Forks, MN 56721
Chapter Social Worker
Tara Giese, MSW, LISW
p. (701) 936-1245
Upper Midwest Regional Staff Contact
Nancy A. Rhodes, Director of Field Development & Operations
P. (212) 242-1968, extension 234
To contact the HDSA national helpline, please call 800-345-HDSA. The HDSA national helpline is open from 9:00 a.m. - 5:00 p.m. EST Monday through Friday.